Bendy People

This is a big step out for me, blogging. Not just blogging but blogging about being sick, the highs and the lows and what it's all about. 

So beginings, I am bendy...by that I mean I have Ehlers Danlos Syndrome 3/Joint Hypermobility Syndrome or whatever the medical world feels like calling it this decade the name changes constantly unfortuantly the symptoms, lack of understanding and lack of effective treatment don't seem to change with the name changes.

It took about 4 years for me personally from when I started to get very very sick to get a firm diagnosis rather than the wishywashy well it sort of sounds like this it might be that, are you sure you're not just depressed diagnosis's that were suggested up until that point although it's now clear I have been suffering symptoms since I was a small child.

So that is me, this is my life and hopefully this is where I will tell people about being bendy, the funny moments, the not so funny moments and the down right hysterical.  Oh and maybe raise a bit of awareness whilst I'm at it.